Post-Polio News Archive

"I’ve led a charmed life in many ways, but as a youngster I learned that a person’s life can change forever in an instant. After contracting polio, I was fortunate to receive treatment at the Warm Springs Foundation in Georgia. Polio affects each person differently, but all Warm Springs patients learned valuable lessons about life – never let illness define you, never be limited by the expectations of others, never give up, and never stop working. By applying the belief that nothing is impossible if you work hard, thousands of Warm Springs alumni, including myself, have led happy and productive lives."

Polio could not stop this braveheart from scaling new peaks

People with disabilities: We are people first

Revisiting Polio

Pat's a grateful survivor

Stonehaven woman reveals legacy of polio

Adkins: Surviving polio and its painful, limiting complications

Polio - the Last Word

A history of polio 1580 B.C. - 2009 A.D.

The Next Page: Saving the world

Inspirational Novella Coincides with World Polio Day October 24

Winnipeg woman remembers St. Andre

"Polio" by Staff Benda Bilili

Defying disease

Post-Polio Syndrome

EFNS guideline on diagnosis and management of post-polio syndrome

Walking not for a cure, but to shine a light

Excerpt From Philip Roth's "Nemesis"

IRS to Hold Special Open House Saturday, Sept. 25 for Veterans and Persons with Disabilities

I AM STILL LIVING WITH THE LEGACY OF CHILDHOOD POLIO

F&M Bank seeks charities to provide wheelchair ramps for disabled homeowners

Lifeline telephone assistance keeps Ohioans connected

1935 Photo at the Roosevelt Warm Springs Institute for Rehabilitation in Warm Springs, GA.

Alan Alda childhood plagued by polio

PPS Internet Resources

Celebration of the 20th Anniversary of the Americans with Disabilities Act

Breath of Life: Post-polio survivor breathes in joy

Polio survivor refuses to slow down

What is the treatment for post-polio syndrome?

Ohio Home Medical Providers Call on Congress to Preserve Homecare as an Option for Seniors and People with Disabilities

Mayor moots private Bill on post-polio syndrome (India)

POST-POLIO syndrome is a neurological condition which can occur in people who have had polio

The British Polio Fellowship

Dr. Gott: Polio posing?

Dr. Donohue: Polio can pay a second visit

Painful legacy of the 'forgotten disease' polio

Daily Ginger Consumption Found To Ease Muscle Pain

A world in a backward spin

Where was the polio vaccine discovered?

ADA In Your Community Poll

Grifols Agrees to Acquire Intellectual Property for Treatment of Post-Polio Syndrome From Pharmalink AB

Post-Polio Syndrome: Polio Revisited

European Conference on Post Polio Syndrome Copenhagen August 31 - Sept 2, 2011

What's Up Doc? Grandmother may have post-polio syndrome

Film reveals Pittsburgh's polio stories

The Polio Crusade PBS - Watch it On-Line

Additional Videos on Polio

"Reclaim Function!": International Conference in Stockholm Aims to Improve Rehabilitation Medicine

Salk Institute celebrates 50 years of discovery, growth

Jonas Salk Faced Down Fears, Doomsayers To Conquer Polio

Information needed in search for brother who was stricken with Polio

Paralyzed with fear: A polio survivor's story

Award for Otto Bock's electronically controlled knee joint

A survivor, Kooiker urges on final push to eliminate polio

I remember when: I was polio pioneer in a test group for vaccine

Post Polio Syndrome Week - No Presidential Proclamation Required (Post Polio Research)

First round of polio vaccinations in US given Feb. 23, 1954

Polio is only a plane ride away

Joyful night for group of polio survivors

Courthouse fixes handicap parking signage, Yakima, Washington

Polio pains linger on in Knox, Australia

State distributes polio warning cards New Jersey

New Jersey Polio Card

Post Polio Syndrome the struggle continues

One step at a time: Salt Lake City researcher records post-polio syndrome

For Some Survivors, Polio Won't Fade Into the Past

Fighting polio with "gentle hands"

University of Utah collecting polio survivors' stories

New Jersey distributes polio warning card (anesthesia)

American West Center at University of Utah Looking for Polio Survivors

WHO: New vaccine critical in wiping out polio

Jordan Rich Show Polio:Forgotten But Not Gone January 10th

Post-Polio Syndrome

PPSRL Post-Polio Internet Resources (December 1, 2009)

Links to Videos from the Wellness Retreat at the International Post-Polio Conference, Warm Springs, GA have been added to the Links Page

Disabilities and the Flu

What is Poliomyelitis?

FAQ: Post Polio Syndrome

Polio: Forgotten, but not gone

Heat will be on in new program (Australia)

When polio scourge hit Nevada County

Footnotes: Small Steps

Five decades after polio vaccine: Four nations still feel scourge

PolioToday.org

Nigeria: Our Battle Against Poliomyelitis -Donald

Nordic Walking Classes Coming to Senior EmPower Day

Common Viral Infection in Infants May Persist Long-term in the Central Nervous System

Fellowship honour for dedication

FDR in Warm Springs, Georgia

Retirement Living TV Healthline Presents: Polio Revisited

The documentary still airs on Retirement Living TV from time to time, Wasser said. Its next scheduled showing is July 17 at 8 p.m. and 11 p.m. (Comcast Cable Channel 175 and Verizon FiOS Channel 245). ***Note: This is the introduction. We will let you know when we hear that it will be broadcast again on RLTV.***

Polio Pioneer Helps Survivors Hold On To Strength

Dr. Lauro Halstead is one of only a handful of doctors in the U.S. who specializes in polio — and he speaks to his patients with authority.

Watch Videos: Shades of Grey Post Polio Syndrome by Post Polio Victoria (Australia)

Polio Network Victoria (Australia)

The Final Inch (The Largest Non-Military Army in History Fights to Win its Final Battle)

Crusade follows fight against Polio (Pittsburgh Post-Gazette Feb 2, 2009)

The Polio Crusade (PBS Watch On-Line)

Hutchinson Kansas man shoots film about polio survivors (Published January 19, 2009)

October 12-18, 2008 WERE STILL HERE! campaign

Study seeks source of fatigue with people with PPS

Polio Survivors Ask…

Nancy Baldwin Carter, BA, M Ed Psych, Omaha, Nebraska, (n.carter@cox.net)

Q: I recently attended a banquet given to raise funds meant to help eradicate polio worldwide. Others at our table seemed to believe that this was the end of it—that once we get everyone immunized, there would be nothing more to do regarding polio. Why don’t people hear as much about ongoing needs of polio survivors as they do about efforts to eradicate the disease?

A: The simple answer is that the CDC and Rotary International and others have spent a good deal of time and money organizing and publicizing this most successful eradication effort (and thank goodness for that). But so far nobody has approached our post-polio cause with anything close to that much vitality.

More to the point, perhaps, is what can WE do? A vigorous grass roots effort on the part of polio survivors and their families could create a domino effect, finally attracting the attention of those in an excellent position to assist us in meeting our goal.

And what is this goal? To alert health professionals, policy makers, and the general public to the fact that polio survivors are active individuals within their communities with successes to tell, and for many of us, unmet needs.

One huge need is for rehabilitation as well as re-rehabilitation. Polio survivors remember the role rehab played in taking us from polio patient to functioning member of society as we recovered from the disease initially. Worldwide, rehab efforts, although limited in some countries, still exist. And now the cause is just as great for re-rehabilitation as those of us with the late effects of polio struggle to get back on our feet from this second blow.

We hope for doctors, therapists, medical institutions to see our plight and come pounding on our door. We look for policy makers to steer others in our direction. We dream of energizing those in our communities in the same way FDR brought them to our side all those years ago.

It all starts here, with you and me and each of us.

After a death in my family last month, someone asked where she could send a memorial. I suggested the research division of PHI, to help boost the amount of money available for promising grants. Shouldn’t people know that right now we’re close to finding a definitive diagnosis for post-polio syndrome—and that this could lead to breakthroughs in treatment?

A few days later she called to ask if I minded her sending the money to a homeless shelter, instead, since they have a current need. Of course the shelter is worthy. And in her mind, post-polio is so remote it presents no urgency whatsoever. That made me sit up and pay attention. What can I do to make a difference? What can I do to get others to take notice?

I’ve been looking over ideas various groups have proposed. Did you see the “button” suggestion? Wearing buttons with the WE’RE STILL HERE logo on them? Brilliant, I thought! I could wear one, and everywhere I go people would ask who “WE” are and why they should care if we’re “STILL HERE.” A Johnny Appleseed of post-polio, that’d be me. How does that quote go? If everyone lit just one little candle, what a bright world this would be!

Or I could reach lots of people at once by being part of producing the skit right here in Omaha that’s offered on the PHI website this year. What a kick!

Take a look at the bright green logo at www.post-polio.org and discover some great possibilities. You’ll see. And remember this: Anything we can do is a zillion times better than doing nothing at all.

Nancy Baldwin Carter, B.A, M.Ed.Psych, from Omaha, Nebraska, is a polio survivor, a writer, and is founder and former director of Nebraska Polio Survivors Association.

Source: Post-Polio Health International (www.post-polio.org)

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